So the kids had their appointments at children's clinic today, it was better news. J'naya's numbers went way done from over 2000 to 900 ( still almost double what they want ot at they'd like it at about 550) Tony's numbers didn't really change still just over 900. Plan of action?? Eye appointments.......EKG's ( to see if the oxalate is doing any damage)....... ultrasounds (to see if there are kidney stones forming). so all in all the Dr. does`t think we`ll be able to get the levels back to `normal`so we may just have to live with what we got! She did suggeste i go on the mayo clinic website to `talk` to parents who also deal with PH1 , she also wants me to see if there is anyway we can all go to the `gathering`of the Ph 1 patients that happens every year however the last one was last summer and in new york (yup can`t afford that) so we will see! Now a BIG problem is finding a pharmacy that will make the K-citra for me so far no luck if I can't find one then I'll have to call the doctor and get another new me.
In other news.......the kids brought home report cards this week Good news all around.....Nothing below a 3 (back in the day that would be a C) and we brought home a pile of 1 ( that would be A's) so they all did well. Well the three that still live at home did the one that lives with her Dad did not show me her report card....I'm not allowed to see it....Daddy says so...I'm also not allowed to punish her.....again Daddy says so. I wonder if Daddy forgets that I carried that child in my body for 9 months, I did EVERYTHING for her for 14 years and now I am nothing.....Anyhow I guess you can see how that is going basically she is being "brain washed" by Mr. Wonderful. I'm still not sure how to handle all that.....All I want is my Ashton back....I miss her ALOT!!
Saturday, March 19, 2011
Wednesday, March 9, 2011
a day in the life
a day in the life of me. Lots of people have asked me what I do all day well here goes:
7:30 am: I go downstairs check the laundry room, clean, sweep and mop. Every six weeks I also close the laundry room for the morning and pull out all the machines and clean underneath them.
from there I go to the lobby and sweep, mop and vacuum. I also clean the windows on the doors, I wipe down the railings on the ramp, and wipe down the furniture. It amazes me how many people must allow their children to climb on their sofas at home with their shoes on, cause their are ALWAYS little foot prints on these sofas. Just cause they don't belong to you does not make it okay!!
I also sweep, mop, and vacuum the ramp leading to the parkade, and check the stairwells and sweep and mop them if needed.
I then go to the center stairwell and clean it ( it's a royal pain cause the stairs have grooves and in order to clean them I have to vacuum.)
from there I go upstairs and I either sweep and mop in front of all the elevators or i vacuum 2 full floors. However I like to switch it up......I was told one day I was late. I don't like to be told when to do things so I try to keep people guessing.
I do get a 20 minute break in the morning which I usually don't take.
Then I get my lunch.
at 12:00 am I take the phone for my manager so she can go on her lunch (I'm on call everyday from 12:00-2:00)
After lunch I do whatever job I didn't do in the morning.(either sweep and mop in front of the elevator's or vacuum the floors) When I do in front of the elevators I also clean the elevators.
and dust the fire hoses,fire extinguisher, walk down all the stairwells looking for burnt out lightblubs and messes.
There are also extra things that get done, like cleaning all the railings in all the stairwells, and washing all the walls in the hallways. I have also scrubbed floors, clean all the lint traps in the dryers.
Then there are the apartment re cleans. If someone moves out, and doesn't do a good job cleaning I go in and re clean it. or if someone was working in the apartment I clean up after them (however I get paid extra for this.)
My two big complaints are yes I am the caretaker but that does not mean I have to listen to your every complaint ( especially if I am sitting in the dentists office with my kids) and if you drop a dirty Kleenex for goodness sake please pick it up, there is no dirty Kleenex fairy I have to pick those up.
7:30 am: I go downstairs check the laundry room, clean, sweep and mop. Every six weeks I also close the laundry room for the morning and pull out all the machines and clean underneath them.
from there I go to the lobby and sweep, mop and vacuum. I also clean the windows on the doors, I wipe down the railings on the ramp, and wipe down the furniture. It amazes me how many people must allow their children to climb on their sofas at home with their shoes on, cause their are ALWAYS little foot prints on these sofas. Just cause they don't belong to you does not make it okay!!
I also sweep, mop, and vacuum the ramp leading to the parkade, and check the stairwells and sweep and mop them if needed.
I then go to the center stairwell and clean it ( it's a royal pain cause the stairs have grooves and in order to clean them I have to vacuum.)
from there I go upstairs and I either sweep and mop in front of all the elevators or i vacuum 2 full floors. However I like to switch it up......I was told one day I was late. I don't like to be told when to do things so I try to keep people guessing.
I do get a 20 minute break in the morning which I usually don't take.
Then I get my lunch.
at 12:00 am I take the phone for my manager so she can go on her lunch (I'm on call everyday from 12:00-2:00)
After lunch I do whatever job I didn't do in the morning.(either sweep and mop in front of the elevator's or vacuum the floors) When I do in front of the elevators I also clean the elevators.
and dust the fire hoses,fire extinguisher, walk down all the stairwells looking for burnt out lightblubs and messes.
There are also extra things that get done, like cleaning all the railings in all the stairwells, and washing all the walls in the hallways. I have also scrubbed floors, clean all the lint traps in the dryers.
Then there are the apartment re cleans. If someone moves out, and doesn't do a good job cleaning I go in and re clean it. or if someone was working in the apartment I clean up after them (however I get paid extra for this.)
My two big complaints are yes I am the caretaker but that does not mean I have to listen to your every complaint ( especially if I am sitting in the dentists office with my kids) and if you drop a dirty Kleenex for goodness sake please pick it up, there is no dirty Kleenex fairy I have to pick those up.
Friday, March 4, 2011
another what????
I love cross stitching.... I LOVE quilting and this week I started crocheting, as if I need another hobby!!! It started as a way to make slippers for the kids. I'm not really good with yarn and it probably won't get to anything fancy but I wanted to make slippers so make slippers I did!!! I think they turned out well! I used a large ball of yarn and was able to make a pair of slippers for J,Tony and Brycen. I will get another ball of yarn and make a pair for Ashton. Once the slippers were done I realized that to tell them apart ( mainly J and Tony's) I would have to add a button or something so I found these cute beads and they picked what they wanted Brycen picked orange elephants, J picked green giraffes and Tony picked pick fish!!
This week we also had dentist appointments and Brycen had is impacted tooth pulled, and a custom spacer put it. So far he hasn't complained at all the only really problem will be keeping the spacer clean as everything gets caught in there!!
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