The kids had their check ups and ultrasounds. In august when Tony had an ultrasound there was spot in his right kidney that looked like it may be a stone. It wasn't shadowing the way stones normally do, so this time the spot was still their but still not shadowing so they have decoded it is not a stone. This means both children are currently stone free. The good news just keeps coming the meds have finally been tweaked enough that they both had good levels. So far so good, as long as we drink LOTS of water and keep taking the meds.
I was so excited to finally get my benefits package so off to the drugstore I go, now I new that the b6 would not be covered and I also new the "new" drug vitamin d wouldn't be covered either but I was sure the K-citra would just because it used to be, Nope I was wrong we now have to pay out of pocket for all of it. It is quite costly, the vitamin D has 100 tablets in the bottle this will last 25 days and costs about $10.00 a bottle (now I could get a cheaper version of this but I opted to get the chocolate flavored chewable ones because the other meds are so big and taste horrible.) the B6 is also roughly $10.00 and has 100 tablets in a bottle but together the kids take 7 of these a day so the bottle will last about 14 days. Lastly there is the K-citra and this is the one that used to be covered and no longer is the cost of these is about $38.00 for a one month supply per child. That's a grand total of $107.00 dollars a month. That's alot now I try to remember that these things are keeping the kids healthy and there for I am VERY thankful that we know about the problem and that the kids a responding to the treatment otherwise we would have some VERY sick kids on our hands!!!
The photo above is the dose of meds that Miss.J takes everyday the smaller ones on the left are the B6 she takes 400mg.and Tony takes 350 once a day, the middle ones are HUGE she takes 2 of these in the morning and two at supper (these are the K-citra) She HATES taking these because they are hard to swallow and they cannot be broken in half or crushed because they will cause ulcers if we do. The ones on the right are the new vitamin D they are a favorite because they taste like chocolate. I try to get them to take them last so that they will "wash" away the taste of the other meds!!!