and there we have it

So the kids had their appointments at children's clinic today, it was better news. J'naya's numbers went way done from over 2000 to 900 ( still almost double what they want ot at they'd like it at about 550) Tony's numbers didn't really change still just over 900. Plan of action?? Eye appointments.......EKG's ( to see if the oxalate is doing any damage)....... ultrasounds (to see if there are kidney stones forming). so all in all the Dr. does`t think we`ll be able to get the levels back to `normal`so we may just have to live with what we got! She did suggeste i go on the mayo clinic website to `talk` to parents who also deal with PH1 , she also wants me to see if there is anyway we can all go to the `gathering`of the Ph 1 patients that happens every year however the last one was last summer and in new york (yup can`t afford that) so we will see! Now a BIG problem is finding a pharmacy that will make the K-citra for me so far no luck if I can't find one then I'll have to call the doctor and get another new me.

In other news.......the kids brought home report cards this week Good news all around.....Nothing below a 3 (back in the day that would be a C) and we brought home a pile of 1 ( that would be A's) so they all did well. Well the three that still live at home did the one that lives with her Dad did not show me her report card....I'm not allowed to see it....Daddy says so...I'm also not allowed to punish her.....again Daddy says so. I wonder if Daddy forgets that I carried that child in my body for 9 months, I did EVERYTHING for her for 14 years and now I am nothing.....Anyhow I guess you can see how that is going basically she is being "brain washed" by Mr. Wonderful. I'm still not sure how to handle all that.....All I want is my Ashton back....I miss her ALOT!!

a day in the life

a day in the life of me. Lots of people have asked me what I do all day well here goes:
7:30 am: I go downstairs check the laundry room, clean, sweep and mop. Every six weeks I also close the laundry room for the morning and pull out all the machines and clean underneath them.
from there I go to the lobby and sweep, mop and vacuum. I also clean the windows on the doors, I wipe down the railings on the ramp, and wipe down the furniture. It amazes me how many people must allow their children to climb on their sofas at home with their shoes on, cause their are ALWAYS little foot prints on these sofas. Just cause they don't belong to you does not make it okay!!
I also sweep, mop, and vacuum the ramp leading to the parkade, and check the stairwells and sweep and mop them if needed.

I then go to the center stairwell and clean it ( it's a royal pain cause the stairs have grooves and in order to clean them I have to vacuum.)

from there I go upstairs and I either sweep and mop in front of all the elevators or i vacuum 2 full floors. However I like to switch it up......I was told one day I was late. I don't like to be told when to do things so I try to keep people guessing.
I do get a 20 minute break in the morning which I usually don't take.

Then I get my lunch.
at 12:00 am I take the phone for my manager so she can go on her lunch (I'm on call everyday from 12:00-2:00)

After lunch I do whatever job I didn't do in the morning.(either sweep and mop in front of the elevator's or vacuum the floors) When I do in front of the elevators I also clean the elevators.
and dust the fire hoses,fire extinguisher, walk down all the stairwells looking for burnt out lightblubs and messes.

There are also extra things that get done, like cleaning all the railings in all the stairwells, and washing all the walls in the hallways. I have also scrubbed floors, clean all the lint traps in the dryers.

Then there are the apartment re cleans. If someone moves out, and doesn't do a good job cleaning I go in and re clean it. or if someone was working in the apartment I clean up after them (however I get paid extra for this.)

My two big complaints are yes I am the caretaker but that does not mean I have to listen to your every complaint ( especially if I am sitting in the dentists office with my kids) and if you drop a dirty Kleenex for goodness sake please pick it up, there is no dirty Kleenex fairy I have to pick those up.

another what????

I love cross stitching.... I LOVE quilting and this week I started crocheting, as if I need another hobby!!! It started as a way to make slippers for the kids. I'm not really good with yarn and it probably won't get to anything fancy but I wanted to make slippers so make slippers I did!!! I think they turned out well! I used a large ball of yarn and was able to make a pair of slippers for J,Tony and Brycen. I will get another ball of yarn and make a pair for Ashton. Once the slippers were done I realized that to tell them apart ( mainly J and Tony's) I would have to add a button or something so I found these cute beads and they picked what they wanted Brycen picked orange elephants, J picked green giraffes and Tony picked pick fish!!

This week we also had dentist appointments and Brycen had is impacted tooth pulled, and a custom spacer put it. So far he hasn't complained at all the only really problem will be keeping the spacer clean as everything gets caught in there!!

another year gone by

Miss. J turned 9 on Feb 12, I know I'm REALLY behind. Anyhow since I'm doing the things I love about you It's time for J's.
9 things I love about J:
1. Her shy quietness......it's not always about being seen and heard.
2. her willingness to learn how to do new things
3. the silly things she does in her sleep (she's a sleep walker)
4. her love for her big sister.
5. her silly laugh, and ability to be really silly.
6. that she's always willing to take on responsibility.
7. how she always wants to hold the new "baby"
8. her love of animals, she could get the wildest animal to trust her!
9. I love that God choose me to be her Mom!

alone

I always feel so alone, maybe it's mostly my part but I really am alone. I really have no friends again part of this is my fault, I have not called people or not gone out with people. But then there have been times that I have tried and was rejected. How many times does one try before they give up?? I really feel alone. I have lost my closest friend of 15 years over a battle of who's the better Mom. I have no friends in the city because I have been away for 10 years and all the friends I had in Selkirk are there, and I feel like I've let those friendships slide, heck most of them don't talk to me anymore. Maybe I'm just feeling sorry for myself, I know that alot of this is my fault, however I did spend a whole year working overnights and while I did that I almost felt like I didn't have a weekend.....my time was always spent trying to sleep or trying to catch up on sleep. Now that I work days I suddenly have no one. Not only that but my husband works evenings most of the time so i don't have a car to get around. Sure I could drop him off but do I really want to get all the kids up at 3 am to pick their dad up at work? I wish I still had my Gracie she was always there, but even that is gone.

Now the real question is how do I make/re build friendships??

I'm at a loss......all I know is I'm REALLY lonely, I don't even feel like I have someone I could call to chat with!!

fabric friday...........a day late :-)

This is my first finished project of 2011:


I really like the pattern, I don't like how it's hanging it seems off somehow, I'm gonna try putting a wooden dowel on the bottom as well as the top and hopefully that helps! The flowers are 3-d flowers. Lie I said I really like it but am somewhat disappointed by it to. Hopefully the next project turns out better.


I have also included a picture from last weeks move,

yup we're rednecks :-)

meds!

I received a call today from the children's doctor, the news was not good. Both kids had fairly high oxalate output, Tony's was at 900 and J'naya's is 2100. The normal is 500. This is a concern. Now are the levels high because they aren't actually taking the meds ( We have caught J flushing hers, or hiding them in her sleeve) or is it because the meds are no longer working?? The plan is to watch them like hawks to make sure the meds are making into their bodies and retesting them in 1 month. I hope it's cause they aren't taking them. I do not want my kids to have to face a transplant!! I have also brought in a new "tool" to make sure the kids take their meds at the right dose EVERY day. Basically it's a white board/cork board, I used little zip lock bags on the bags is the first letter of the child's name and a number ( I.E. J-2 would be J'naya's for the second) so each day the child takes the bag for that day and it has all the meds they need in it. This way if either one misses I know who!! I hope this will make it easier to do. It is also on the wall which will make it noticeable and harder to forget. I also made some of these baggies to leave with my parents for sleepovers so that even at Grandma and Grandpas they get their dose!!



that's what it looks like. It's one months worth of medication ( we won't mention the cost all of which IS NOT covered by insurance) We will be offering a reward at the end of the month for all the days the meds were taken!! I hope this works!!